A bi-monthly podcast that discusses COGI’s bold vision for health equity by bringing all stakeholders together (doctors, patients, hospitals, healthcare systems) to holistically address social determinants of health (SDOH) and social care needs for diverse communities of color with IBD and other chronic illnesses.
This season discusses the diverse patient experience in BIPOC communities, mistrust in science, the ins-and-outs of studies and research, and more!
Co-hosted by: Melodie Narain-Blackwell (COGI) and Matthew McCurdy (BLKHLTH)
When your physical state of being seems “off”, do you schedule an appointment with a physician or head to Dr. Google and self diagnose? On this upcoming episode, we discuss our nuanced relationships with doctors, which can ultimately affect our level of care. This conversation gives a perspective on how we got to this narrative as a community and understanding ways to help improve our trust in healthcare providers.
Guests: Adesumbo Odunlami (Bristol Myers Squibb), Ramona Burress (Takeda).
The road to diagnosis may happen in a reasonable amount of time, but many stories express a different timeline. In this episode, Josh and Dominique share their stories of living with IBD — from self medicating when experiencing symptoms of digestive discomfort, to physician encounters where symptoms of IBD were ignored, to ultimately advocating for their health. And with the encouragement of COGI, how sharing their story helped them evolve as patient advocates.
Guests: Joshua Denton (COGI Ambassador), Dominique Battle (COGI Ambassador).
For more information on COGI’s Ambassador Program, click here.
“I didn’t have a long process to be diagnosed, however when I was diagnosed the diagnosis kept changing. I wasn’t told that I had certain conditions, like C-Diff and I was never given any medication other than steroids and inflammation medicine.” This is what Latonia learned while reading her medical records for the first time. 20+ years after diagnosis, she found out that her treatment plan wasn’t as thorough as it could have been.
In doctor-patient relationships, the doctor usually starts off with the advantage because the patient is the one who seeks medical care. Normally more transparency on both sides leads to better outcomes. When this doesn’t happen, the blame game potentially surfaces. How do we mitigate this?
When you think of a “buy in”, it’s often associated with companies and business deals… but what about the patient buy in when it comes to advancing science, treatments, and resources? In this episode, we talk about the alignment needed for patients to buy in to advocating on behalf of themselves and other patients or even advancing research that will improve health outcomes.
Guests: Donna R. Cryer, JD (Founder and CEO of Global Liver Institute), Arnie Joseph (Founder and CEO of Chroma Health Solutions)
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