Our mission is to improve the quality of life for BIPOC who are affected by IBD, Digestive Disorders and associated Chronic Illnesses; through Community, Research, Education, and Advocacy.
I requested a history of my medication and found out that I had been given Inflectra several times without me even knowing...when I would confirm that I was there for Remicaide no one ever stopped to correct me or clarify that the medication had been switched. I contacted my GI's office and the nurse confirmed that I had not been on Remicade for "a while". My question? Why wasn't I notified?
A patient’s journey combating any chronic illness is a vital story that, if willing, should be told so that others can learn from their journey.
My journey with Crohn’s disease started after I was diagnosed in 1988. Crohn’s disease if anything has made me “the strongest woman I know” as my children have said.
If something isn't right please go check it out! I knew something wasn't right when I first noticed the symptoms at 16, 17 years old. In 2003, I was diagnosed with Crohn's Disease and Rheumatoid Arthritis after three years of trying to figure out why I was feeling ill.
I was diagnosed with Ulcerative Colitis in November 2012. My diagnosis came after a year of having trouble keeping water and food down, fatigue, body aches, weight loss and vomiting blood. It was a long and painful experience.
I am a survivor and fighter living with Crohn's disease. Living with a chronic illness is very difficult. It affects so much of our lives emotionally, physically, mentally and also spiritually. One day I can feel like I am Super Woman, and the next day I can't even get out of bed.
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