Our mission is to improve the quality of life for BIPOC who are affected by IBD, Digestive Disorders and associated Chronic Illnesses; through Community, Research, Education, and Advocacy.

A Real Picture Of Health:
LaTesha Harrison-Thompson

“If the insurance companies covered medical products from the outset, there wouldn’t be such a cost to these companies for hospital stays and doctor visits which ultimately result
when access to medical nutrition is denied.”

LaTesha has always had a difficult relationship with food. Food was associated with pain.

 

She was diagnosed with Crohn’s disease at five years old. At thirteen, she had to get a feeding tube and would get monthly deliveries of Ensure and Boost. These products were the foundation of her diet.

 

After a while, the tube became infected and the Ensure was no longer covered by her mother’s insurance. She lost weight and had to endure repeated trips to the hospital.

 

Sadly, child services was notified because they thought that LaTesha was suffering from child neglect and was malnourished. Her mother was doing everything that she could do to help her child, but LaTesha simply wouldn’t eat because she would be in so much pain.

 

LaTesha believes that insurance companies play an important role in the lives of those with gastrointestinal disorders as patients’ lives can sometimes depend on access to medical nutrition products.

 

In LaTesha’s case, the insurance company covered none of her medical nutrition needs.

Medical Nutrition Equity Access

Children and adults with digestive or inherited metabolic disorders are limited in the way that their bodies digest or metabolize typical foods. Grocery store or regular foods, if ingested by individuals with these disorders, can result in exacerbation of their disease. Left untreated, food becomes unsafe as the body is unable to absorb necessary nutrients which can leave patients with unnecessary surgeries and hospitalizations.

 

To get the nutrition that they need, these patients rely on medically necessary foods which are specifically designed for nutritional treatment of the disorder and are considered the standard-or-care for patients with digestive disorders.

 

Medically necessary foods typically must be ordered through a pharmacy or a durable medical equipment company and can be expensive. However, insurance companies typically don’t cover medically necessary nutrition products.

 

When insurance companies do cover medical nutrition products, coverage can come with stipulations that these products be administered through a tube that is placed in the nose or in the patient’s stomach, both of which carry additional risks.

 

Without medical nutrition products, patients can risk organ damage, potential dehydration, repeated hospitalizations, and even death.

 

Malnutrition is a factor in health inequities, which is caused by the effects of certain diseases, food insecurity, or functional limitations. Individuals with digestive or inherited metabolic disorders are susceptible to malnutrition if they are denied access to medical nutrition products.

 

The effects of malnutrition are not equal. Malnutrition is more often found in non-Hispanic Blacks as compared with other racial groups. Additionally, malnutrition is more prevalent among Black patients who are hospitalized, those from lower-income communities, and those who are older.

 

Coverage of and access to medical nutrition products for IBD patients is a small step in addressing health disparities for IBD patients of color.

Join Our Community

Find us on the following platforms and join the conversation!

Subscribe to our newsletter!

Never miss an update. Receive periodic emails from us, and cancel at any time.

This field is for validation purposes and should be left unchanged.