Our mission is to improve the quality of life for BIPOC who are affected by IBD, Digestive Disorders and associated Chronic Illnesses; through Community, Research, Education, and Advocacy.
In the 20 years, I have lived with Crohn’s disease, I have realized there were ways that access to care can be improved to benefit a patient’s health and well-being.
Early in my Crohn's journey, I began taking biologics. Two years into being on this medication I switched employers, which caused my health insurance to change. The new insurance company wanted to switch me to a different medication even though the biologic I was on placed me into clinical remission.
I was subjected to step therapy due to my insurance at the beginning of my diagnosis - I received oral medication in 2014. A year after not achieving baseline outcomes, I was moved to a biologic.
I requested a history of my medication and found out that I had been given Inflectra several times without me even knowing...when I would confirm that I was there for Remicaide no one ever stopped to correct me or clarify that the medication had been switched. I contacted my GI's office and the nurse confirmed that I had not been on Remicade for "a while". My question? Why wasn't I notified?
Unfortunately, clinical trials often don’t represent the real-world diversity of patients with IBD and other diseases. Continuing with the current state of clinical trials fails both patients and their health care providers (HCPs) and deepens the existing health inequities experienced by underserved communities.
Depression is a constant feeling of loss and sadness. It can mentally and physically paralyze you. The important step is recognizing the signs of depression before getting to a place of hopelessness.
A patient’s journey combating any chronic illness is a vital story that, if willing, should be told so that others can learn from their journey.
Hollister has the products and resources to help you maintain healthy skin and live your best life.
Very similar to the confusion of an IBD diagnosis, the discovery of a fibroid or multiple fibroids can have you confused about what this means and what are the next steps. The first step is arming yourself with knowledge about your diagnosis.
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