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Embracing My Own Style: Fashion, Confidence, and the Journey with an Ostomy Bag

By Patricia Norzeron

I have always loved fashion. Growing up in the early 2000’s, I grew up collecting J-14 teen magazines and seeing all these beautiful women in outfits that radiated confidence and the style of that early era. I imagined myself in those clothes and fantasized about how the bold colors, body-hugging dresses,  and oversized jackets, that made a statement would look on my body.

However, my reality was different. My reality was different because I was born into this world with the odds stacked against me. As an infant, l underwent a surgery that left me with colostomy bag before I even knew what it meant to be “normal.” Growing up, I never quite felt like I belonged anywhere or amongst any group of individuals. My childhood was unlike most children as it was marked by hospital visits, medical term I didn’t understand, and a body l couldn’t quite connect with. For as long as I can remember, my body didn’t feel like my own.

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Then, by the time I turned 21, I had had been through another surgery that left, me with an ileostomy bag. A new chapter in my life began, not because I had chosen it, but because it was the only way for me to continue living. That same year, my body dysmorphia kicked in big time. I couldn’t help but feel like my body betrayed me, like I was somehow less than the other women around me. I was suppose to have been entering my prime. My prime was being 21 and full of life. My prime was supposed to consist of me figuring out who I was and what l wanted. Instead, I was faced with a challenged that made me not connect the image I was seeing in the mirror with the bodily image I had imagined for myself. There was absolutely no alignment. I felt like a stranger in my own body!

As one could imagine, this new body tremendously crippled my ability to be confident. The confidence that I longed for and needed seemed unreachable because I was battling unrelenting and negative intrusive thoughts about my body every single day.  It did not help that there was the struggle of finding clothes to fit this new body that would allow me to joyfully express my personality.  I can remember times when I wanted to wear trendy styles and fitted clothing, but didn’t feel like I could. The “secret” bag hanging from my side that I kept hidden away, hoping no one would notice made me feel like all I would ever be able to wear were baggy shirts and loose pants with the objective of keeping it undetected by others.  My thought was that if I couldn’t see it, then maybe no one else would either.  There was one problem though.  The problem was that even when it wasn’t visible, I still knew it was there and its presence affected everything. The way I carried myself, the way I interacted with others, the way I saw myself was affected by this bag.  For many years this continued until I discovered the world of thrifting.

In a large and dusty  Goodwill Outlet warehouse, something clicked. Surrounded by bins of clothes that told stories of the lives of others, FOR THE FIRST TIME, I began to feel a little spark inside of me about shopping for clothes for my body. Thrifting evolved from just shopping for clothes to hunting for pieces of my identity. Every time I found something that caught my eye—a vintage jacket, a pair of perfectly faded jeans—I felt a small sense of victory! These clothes had history, and relatably, so did I. Thrifting became an experience that rescued me from the quicksand of negative thoughts and emotions about my body that skewed my perception and self-worth.  In the past, even to this very moment in time, thrift stores granted me a sense of freedom. Fashion, for me, has never just been about looking good; Fashion should make me feel good as well.  Each piece I found, while thrifting, wasn’t dictated by trends or societal standards. They were unique, just like me. Slowly, my wardrobe started to reflect who I was—bold, quirky, mature, and entertaining, but still soft also.

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Thrifting became my therapy.  It gave me the opportunity to curate a wardrobe that reflected my individuality. I no longer saw my ileostomy bag as something to be ashamed of but rather a part of me. It wasn’t a flaw but now accepted by me as a testament to my resilience.  Being able to see my bag in a positive light was monumental because I had become hyper-aware. I felt every shift, every movement, and was convinced that everyone around me could see it. The ironic thing was that no one even noticed it. If they happened to have noticed it, they honestly didn’t care. I started to realize that the only person obsessing over my body was me.  That realization freed me to be able to enjoy fashion which motivated me to give my focus more to the uniqueness and beauty of the clothing I found at thrift stores rather than my bag.  The more I went out thrift shopping, the more I was able to experiment with fashion by my terms and in my way.  There have also been lessons that I have learned also.

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One of the most valuable lessons I have learned is that there’s a difference between fashion and confidence. Fashion is the clothes you wear—the external expression of who you are. But confidence is something deeper. It’s accepting who you are, flaws and all, and deciding that you’re worthy of taking up space in this world. For years, I had let my body control how I felt about myself, but confidence was about reclaiming that power.  Since gaining that understanding, I started embracing the things I always wanted to wear as a child but shunned myself away from. I stopped hiding behind oversized clothes and opted for fitted dresses, bold prints, and the modest 60s style instead. The more I experimented with my personal style, the more I started to accept and even love the body I had been given.

My journey to body acceptance hasn’t been easy, There are still days when I struggle.  There are times when I still experience that negative intrusive voice attempting to battle me in my head but I begin to think about the influencers who wear their disabilities with pride.  I remember the the ostomy bag models within the fashion community and industry, or ostomates like myself, who create posts with the hashtag #bagwhatbag. The very first ostomate I followed, Gutless and Glamorous, had an ileostomy bag just like me, AND SHE OWNED IT!. She unapologetically wore bikinis, tight dresses, and high-waisted jeans without a second thought. Seeing someone like me with an ostomy in the world of fashion was amazing and very inspiring. She wasn’t hiding but actually living her life in freedom and authentically.

Living with an ostomy has taught me a lot about resilience and self-acceptance. Fashion has given me an outlet to reclaim my confidence. It isn’t just about the clothes but more about embracing who I am inside and out. Now when I walk into a room, whether it’s for a photoshoot or to enjoy a simple gathering, I carry myself with the pride of someone who has overcome their own limitations and learned to thrive in their individuality.  I think about the people who can see me and might become inspired by me someday in the same way Gutless and Glamorous inspired me.

I started sharing my journey online by connecting with others who had similar experiences such as women with ostomy bags, women with disabilities, and women who felt like their bodies didn’t fit into the narrow definitions society created. The more I opened up, the more I realized that I wasn’t alone and that made a difference in my life.  Their stories and no longer feeling alone empowered me to open myself up to at least try things I had never done before and make some dreams come true.  Since fashion, for me, became a tool not just for expressing my creativity but for discovering my confidence, I took a leap of faith and decided to participate in Orlando Fashion Week when I found out about it.  Not only was it a dream come true, but it also allowed me to show the world that you can redefine beauty and confidence, no matter what life has dealt you. I have also modeled a friend’s who was in the need of portfolio building photos for their photography business.  Each time I stepped in front of the camera, I felt a sense of freedom and joy that I had never experienced before.  Experiencing just those two opportunities have strengthened and empowered me to never limit myself, nor put myself in a box.  Just like fashion, my pick is limitless.

Now that I’m 24, I look in the mirror and I see a woman who is still learning, still growing, but who is undeniably proud of how far she’s come and fashion, undoubtedly, has helped me be able to do that.  Fashion helped me find my voice, but confidence allowed me to truly speak. I may never have the body I once imagined for myself, but the body I have is enough. And that’s a kind of beauty that no amount of fabric can replace.

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