Our mission is to improve the quality of life for BIPOC who are affected by IBD, Digestive Disorders and associated Chronic Illnesses; through Community, Research, Education, and Advocacy.

Advocating for the COCCI Culture

April 16, 2023 - April 18, 2023 All Day EDT
AC Hotel Washington DC Capitol Hill – Navy Yard 867 New Jersey Ave SE, Washington, DC, 20003
Advocating for the COCCI Culture - RGB (2)

Advocating for the COCCI Culture (AFTCC) is an event where patient advocates discuss important policies and legislations that are priorities to COCCI and meet with Members of Congress to effect change.

2023 Program Topics

2023 Program Topics

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Sunday, April 16

  • FDA
  • Advocacy
  • Story Telling

Monday, April 17

  • Advocacy in Action
  • COCCI Policy Priorities and Updates
  • Public Policy and Advocacy

Tuesday, April 18

  • Hill Day Meetings

A Real Picture of Health Campaign

Real stories about how current policies are affecting patients.
Access to Care/Utilization: Non-Medical Switching
Tionna Forchion's story touches on the trial and error of finding a medication that could stabilize her Crohn's disease. Once she found a medication that worked, she had to stop the medication because her insurance would no longer cover the cost. This challenge made her feel like, "money mattered more than her life".
Watch Now
Medical Nutrition Equity Act
Latesha Harrison, speaks about being diagnosed with Crohn's disease at 5 years old and her challenges with maintaining adequate nutrition due to insurance parameters.
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Access to Care/Utilization: Co-Pay Accumulator
Joshua Denton's journey focuses on navigating the cost of medicine to manage his Ulcerative Colitis. Between high deductibles and the cost of medication, there were times he had to find creative ways to stretch his doses -- and even missed doses until he had access to pay for his medication.
Watch Now
Restroom Access Act
Dominique Daniels shares her story about being an Ulcerative Colitis patient and her challenges with public restroom access. While The Restroom Access Act (also known as Ally's Law or the Crohn's & Colitis Fairness Act) was passed in 2005 by several states, many have not enforced compliance of the law. Other states still have not passed a law leaving patients like Dominique with limited safe spaces.
Watch Now
COCCI Advocacy Priorities
2022 Highlights

2022 Highlights

Sponsored By

Sponsored By

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